This letter was also unsigned, but closed with a series
of dates and results underneath the heading “Tests &
Innoculations.”
We went to a party in Oakland that night and rang in the
new year every hour on the hour with people in various time
zones on television. We all wore cardboard tiaras and threw
a lot of glitter. After everyone had gone to bed or simply
lay where they had fallen, I sat on the front porch with
a bottle of wine and a pack of cigarettes and drank a hole
in my heart and smoked a spot onto my lung.
Having spent most of my life searching for her, I met my
mother for the first time the following November. When I
started looking for her in earnest 11, 12, 13 years ago,
all I had to work with was her last name. I took this single
word and, with the help of several phenomenal friends, scoured
print and Web archives, databases, genealogical societies,
city directories, phone books and church records all over
the country to find my mother’s first name. I then submitted
this information to a professional investigation firm in
Southern California, which returned 37 listings nationwide.
After receiving this list, every day felt like a free fall
from a great height while I whittled down the possibilities
by a process of intuition and blind luck. Eventually I found
her.
When I met my mother, I was 30 and had been living in California
for almost five years. I had flown back to New York for
the long holiday weekend, and I stood on her front porch
in Schenectady and waited with one of my best friends from
grade school. It took some time for her to descend the stairs
from her second-floor apartment. As a student at Union College,
10 years prior, I had lived directly around the corner from
her, but had never seen her face until that Saturday after
Thanksgiving.
At the time, I was working as a scientific editor for a
major Web directory in San Francisco and began conducting
my own research on the causes and symptoms of schizophrenia
on the sly. I had studied psychology, briefly, at Cornell
and started to recall some of the images that were projected
onto massive screens for the almost 2,000 students usually
in attendance in Bailey Hall for the Psych 101 lectures.
They were short film reels of patients undergoing electroshock
therapy, cross sections of malformed and diseased brains,
and near-silent clips of catatonic patients in stark facilities.
The woman who greeted me at the door that day (who had my
blue eyes and my kinky hair!), however, wore one of the
gentlest expressions I have ever seen, and she changed my
life in an instant. I had resigned myself to the fact that
I would be overcome by choking sobs and searing tears, but
I was not. My mother, however, wiped her eyes for the hour
and a half that I spent with her. She told me stories about
our family and about relatives I didn’t even know I had,
and I listened, every once in a while wondering how much
more I could stand. In the course of my research, I had
discovered that because of her condition I was predisposed
to the development of certain conditions like depression
(check) and alcoholism (check, check, check), but I was
not prepared to hear about all of the lives cut short in
my family by drinking and violence.
My mother kissed me on the neck as I left (I’m a bit taller
than she is) and I felt the weight and trauma of a decade
of my own substance abuse fall away from my body as I walked
back down the steps of her apartment building. The whole
experience was like making a pilgrimage to Lourdes without
having to cross the Atlantic, but I was the only one who
could see the crutches and leg braces falling to the sidewalk.
In February 2000, I received the results from the New York
State Department of Health’s Adoption and Medical Information
Registry. Almost 30 years after the fact, Peter M. Carucci,
director of vital records, wrote to inform me that my parents
were white Americans and that my father was male and that
my mother was female.
According to public record, there are 19 women in the United
States with my sister’s name and date of birth. I have called
each of them at their homes in Minnesota, Washington, Texas,
Georgia and Ohio. I listened to their answering machine
messages over and over again trying to discern if their
surnames were acquired by marriage so that I might cross
them off of my list and move on to the next address and
phone number. On the rare occasion that one of them actually
answered the phone, she would invariably become angry at
the invasion of privacy and would demand to know how I found
her information. When I was able to explain that I was looking
for my sister whom I had never met because we had been separated
as children, then her tone would soften abruptly before
she hung up on me.
It wasn’t until September 2001, while Gaston and I were
bouncing around western New York and southern Ontario, that
I found myself standing on her front porch just outside
of Rochester. We had been invited to a friend’s wedding
in Buffalo and I leapt at the opportunity to run down one
of my 19 leads in person, but no one answered the door for
three days in a row. Each time we approached the house in
our oversized rental car, I panicked and feared success
as much as I feared the failure I had become so accustomed
to. Hours before we were to fly back to San Francisco, I
located her foster mother at work by following one of the
most tenuous leads that I had (a name in an article about
a local food drive). “Oh my god, oh my god, oh my god,”
is all she could say after the receptionist finally put
me through to her office.
I met my half-sister for the first time last August at the
airport in Oslo. She flew in from Japan, where she has lived
for the last eight years, and I paced the terminal for hours
and hours, waiting for her connecting flight from Amsterdam
to arrive, rehearsing the things I might say and the things
I wanted to say when she walked through the gate. Statistically,
there is a 15 percent chance of developing schizophrenia
if one of your parents has the disease. I think that this
number was in the back of my mind when I scanned her face
and lost all of my words and simply offered her a piece
of my Kvik Lunsj chocolate bar on that bright, unforgettable,
Scandinavian afternoon. We traveled for a week by train
north through the country until we arrived in a small farming
village just south of the Arctic Circle. There we buried
the ashes of our great- grandmother, Agnes, alongside her
own brothers and sisters. I never had the privilege, nor
the legal right, to meet Agnes, but hers was the first memorial
that I have ever attended for a member of my own family.
Statistically, I am screwed. I am screwed because my father
also has the official diagnosis of paranoid schizophrenia,
so my risk of developing the disease jumps to just shy of
50 percent. My father, bless his congenitally defective
heart, has refused any and all contact, and I have respected
his wishes. He returned a Christmas card and a picture of
me that I had sent to him with the following holiday greeting
scrawled across the front of the envelope:
DOES – NOT LIVE – ANYMORE. NO – MORE MAIL. I’M – A CRIME
VICTIM AT – STATE AND – FEDERAL LEVELS. ANYMORE MAIL – I’M
RETURNING TO SENDER.
He resides on a locked ward near the Quebec border and hordes
batteries, stamps and bits of machinery (among other things)
in anticipation of the coming apocalypse. My mother talked
about him that first day, in a monotone that is peculiar
to people with schizophrenia, and told me about his inexplicable
tantrums in the middle of the night when he would wake up
screaming and smash glasses and dishes in the kitchen until
there was nothing left to break. I take solace in the knowledge
that his response to me was (hopefully) a product of an
altered brain structure and erratic dopamine levels rather
than a pointed rejection of his long-lost son.
 |
|
There
should have been a label slapped on my ass as I was
being scanned through the orphanage checkout that
read: Warning: This Product May Self Destruct
When Combined with Alcohol.
|
I
located one of his brothers (my uncle Duane) and have spoken
to him twice. The first time that I summoned the courage
to pick up the phone and introduce myself to yet another
unknown relative, he asked me, point blank, what was “wrong”
with his brother. They hadn’t spoken in years and my father,
apparently, was a bit off while they were growing up. When
I got to the word “schizophrenic,” he interrupted and barked,
“What’s that?”
My uncle has a son named Larry. I have a picture of my uncle
Duane and my cousin Larry taken in 1988, and it saddens
me because I know that they too have not spoken in years.
I don’t have the heart to tell my uncle and his new wife
that Larry’s got it, too. You can see it in his awkward
stance, the Velcro shoes on his adult feet, and the expression
on his face. It could be described as “dim,” but I’ve come
to perceive it as extreme disinterest coupled with a very
self-conscious and overwhelming confusion. I have a picture
of my mother as a child, given to me by a distant relation
while I was in Norway with my sister, and she has the exact
same heaviness in her eyelids that makes them both look
like they’re trying, unsuccessfully, to hide a great sadness
from the camera.
At my desk, months before meeting my mother, I had discovered
a condition known as alcohol-induced schizoaffective disorder
in the course of preparing for the reunion. I was stunned.
I have threatened, and attempted, to take my own life on
several occasions (with alcohol, drugs, gravity, speed,
blades) and had attributed these episodes to certain unfortunate
aspects of my strange upbringing. The more I’ve learned
about this particular brand of psychosis, triggered both
by substance abuse and by withdrawal, the more the scales
tipped toward a clinical explanation for my desperate and
terrifying actions and away from an overblown artistic temperament
caused by a difficult childhood. As with alcoholism and
depression, I have inherited another predisposition that
I’ve come to think of as a “schizophrenic sensitivity” that
is expressed only when I am under the influence.
In their now-famous paper about the form and structure of
DNA, James Watson and Francis Crick wrote: “It has not escaped
our notice that the specific pairing [of purine and pyrimidine
bases] we have postulated immediately suggests a possible
copying mechanism for the genetic material.” (From “A Structure
for Deoxyribose Nucleic Acid,” by James D. Watson and Francis
H. C. Crick, April 25, 1953, Nature, Vol. 171.) What
this says to me 50 years later is that, despite the fact
that my name changed three times within the first 10 years
of my life, I was and will continue to be myself, genotypically
speaking. Gattaca notwithstanding, there should have
been a label slapped on my ass as I was being scanned through
the orphanage checkout that read: “Warning: This Product
May Self Destruct When Combined with Alcohol.” I was placed
with a foster family, however, solely on the basis of my
blond hair and blue eyes, and all of my actual hereditary
traits and potentialities were sealed away, essentially
forever, with my medical records. No one thought it necessary,
then or now, for me to know that suicide runs rampant through
my family history.
I assume that this was also the case with my brother, whom
I found out about on that first afternoon at my mother’s
kitchen table. He is named after my father and turned 30
at the end of January. I’ve got a copy of his birth certificate,
but little else. Unlike my sister and I, he was taken by
social services at birth, and his name was changed almost
immediately. My mother has told me the story of that day
dozens of times in the last three years. She describes his
hair and his eyes and the birthmark on the back of his neck
and how the nurses refused to ever let her hold him.
While I do not question the fact that my parents were unable
to care for their own children, I do take offense at the
fact that the three of us were expected to never look back
after our placements in the various households full of strangers
who raised us throughout New York state after we were separated.
I doubt that professional scientific journals such as Nature
were required reading for social workers, attorneys or members
of the clergy in the early 1970s, but in retrospect, I think
they really should have been. I find it criminal that the
people responsible for my placements used my physical appearance
as the sole criterion to match me with potential foster
and adoptive families. These same “professionals,” however,
turned a collective blind eye to a number of potentially
life-threatening inheritable traits that I then had the
pleasure to discover, by way of a nightmarish process of
trial and error, later in my life.
In July, I stood on the front steps of a home on one of
the quiet side streets behind Crossgates Mall. After I rang
the doorbell, I stood face-to-face with a man who was born
on my brother’s birthday (Jan. 28, 1973) and who was born
at the same hospital (St. Peter’s). The man standing in
front of me was angry for the intrusion and had an olive
complexion, brown eyes and fine, straight brown hair parted
in the middle. The man standing in front of me was born
on my brother’s birthday at the same hospital, but the man
standing in front of me was, unfortunately, not my brother.
His features were distinctly not Scandinavian in the least,
so I asked him what his background actually was. (“Italian?
French?” I queried.) And he didn’t know because his father
had been adopted. I thanked him for his time and left angrier
at the system and the laws than I had been before I had
walked the excruciatingly long block from the rental car
to his front door.
There was another letter from Peter M. Carucci in my mailbox
when I returned home to California that informed me that
“the adoptee,” my brother, “has not yet registered.” The
letter went on to say that my brother’s parents were white
Americans and that my father was male, that my mother was
female, and that my brother was (astonishingly) male.
The New York State Adoption Information Sibling Registry
is, for all intents and purposes, a cruel joke. In order
for a reunion to be facilitated, both siblings must submit
their respective applications to the New York State Department
of Health. However, in order to submit an application in
the first place the adoptee is required to supply a copy
of his or her original birth certificate with both parents’
names listed on the document. This, simply stated, is unrealistic
and offensive to a population of American adults who may
not even know their own family surnames. My “official” birth
certificate, on record in the Office of Vital Statistics
in Albany’s City Hall, contains only the names of my adopted
parents and is dated 1980, a full decade after my actual
birth.
Crazy is a word that no longer peppers my casual conversations
these days, because crazy is also a word that may already
have taken my brother’s life. He is the last member of my
family that I need to find, and I hope that one day in the
near future I’ll be able to pick up the phone, dial his
number and tell him secrets like “SNAP-25,” “RGS4” and “HLA-B44.”
These are proteins, genes and gene types thought to be involved
with the development of schizophrenia, and they may have
already conspired against him. Crazy is the fact that, when
I am finally able to locate and dial the number that will
allow me to warn him about the electrical storms that might
one day rage through his prefrontal cortex, there might
not be anyone to pick up the phone when I call.
In May, I stood in front of a judge in San Francisco Superior
Court and petitioned my adopted state for the legal right
to use my own name. I filed the papers for this in March,
and the first available court date was early morning on
my 33rd birthday, a total coincidence that I jumped at instantaneously.
At 9 AM on May 19, 2003, I reclaimed what was taken from
me by the archaic adoption laws that are still in effect
in my home state. Before the doors of the courtroom actually
opened, I noted that since I was representing myself in
court without the assistance of an attorney, under my adopted
name were the words Propria Persona (“In one’s own
proper person”) and I thought this a fitting title for one
of the proudest days of my life. I took back my own name
for myself, but I also did it for my sister and my brother
and for the thousands of other adoptees whose lives, identities
and families are still being held hostage by the state of
New York.
Michael
Van Allen holds degrees in English and creative writing
from Union College and San Francisco State University. He
can be reached via e-mail at MichaelVanAllen@Yahoo.com.